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My husband was understandably overwhelmed and angered by our son’s disease. I studied all the literature available at the library (there was no internet in those days).
I became an expert in Fanconi Anemia, because most doctors had no idea what it was or how to treat it.
Suzanne Kammer Suzanne is a twenty something living in Toronto, Canada.
Why leave my marriage if there was no better option?
I thought it was crucial to give the kids a two-parent household, no matter what.
With therapy and increased self-awareness, I realized that I had been giving up too much of myself in this marriage. There may not be Mecca out there on the other side of marriage, but I had to leave. Divorce wasn’t easy, but here I am, eight years later, living an incredibly rewarding life I’m proud to have created.
In his first two years of life, he had 17 surgeries.
We learned he had Fanconi Anemia, a rare genetic disease that often causes bone marrow failure and death, usually before a child reaches adulthood.